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National Pediatric Transplant Week 2020: Ending the Pediatric Transplant Waiting List

National-Pediatric-Transplant-Week-2020The Purpose of National Pediatric Transplant Week 2020:

National Pediatric Transplant Week 2020 is a time to share the powerful message of ending the pediatric transplant waiting list. The observance aims to shed light on the innovative work being done by our clinical partners, honor donor families whose children have saved and healed lives through organ, eye and tissue donation and it’s a time for recipient families to share their thanks.

A part of National Donate Life Month, National Pediatric Transplant Week takes place every year during the last full week of April. This year it’s recognized April 19-25.

Stats:

Locally (Colorado & Wyoming):

  • 22 children under 18 are waiting for a lifesaving transplant locally.*
  • The organ most in need for those waiting locally is the kidney.
  • There were 16 pediatric donors in our service area in 2019.

Nationally:

  • 1,923 children received lifesaving transplants in 2019.
  • Nearly 2,000 children under 18 on the national transplant waiting list.*
  • There were 917 heroic pediatric donors in 2019.

*as of 4/9/2020

Local Stories:

Vienna, Pediatric Liver Recipient
“When Vienna was an infant, her parents were told she suffered from a rare liver disease in which her bile ducts didn’t form properly and that she’d need a liver transplant in order to survive”… continue reading Vienna’s story of hope.

Gabriel, Pediatric Heart Recipient
“Pregnant with our first child, I learned that my unborn son would be born with a heart defect called Hypoplastic Left Heart Syndrome and would need a heart transplant immediately following his birth in order to survive. Not knowing what this meant, I struggled to make sense of all that was happening, but was determined to do the very best for my baby”… continue reading Gabriel’s story of hope.

Babette-Donor-Dash

Babette and her daughter, Kayla with Brianna’s memorial sign at the Donor Dash

Babette, Pediatric Donor Mother
“Brianna helped people when she was alive and now she was going to give the gift of life in her death. We know that she saved at least three families with her organs and now these families have a second chance at life”… continue reading Babette’s story of hope.

The Driscoll Family, Pediatric Donor Family
“The decision to remove Liam’s ventilator was the most difficult decision we have ever had to make,” Lori said. “However, when we were approached with the news that Liam could be a heart donor, we made the decision to donate without hesitation”… continue reading the Driscoll’s story of hope.

Local Children’s Transplant Center:

Children’s Hospital Colorado has helped change the lives of children through transplantation for 30 years. As the only pediatric organ transplant center in the state, Children’s Colorado has performed more than 1,050 lifesaving organ transplants since 1990, including 119 transplants from generous living donors. Their heart, kidney and liver transplant programs achieve outcomes among the best in the nation.

Children’s Colorado is also home to the Center for Cancer and Blood Disorders, offering the region’s most experienced pediatric blood and marrow transplant and cellular therapy program where they’ve performed 1,000+ pediatric bone marrow transplants in their 25-year history. The hospital’s Blood Donor Center facilitates lifesaving blood and platelet donations to fulfill 95% of the hospital’s needs.

Ways You Can Get Involved:

  • Share this article or any of the local stories above with your friends and family on your social media pages, be sure to use the hashtag #NationalPediatricTransplantWeek.
  • Have a story of your own you’d like to share? We’d love to hear them! You can share them here if you’re in Colorado, or here if you’re in Wyoming.
  • You can always help by signing up to be an organ, eye and tissue donor when you obtain or renew your driver license or any time online at DonateLifeColorado.org or DonateLifeWyoming.org.

As a reminder, for anyone under 18 years old, a parent or legal guardian must authorize donation. When obtaining a driver license, 15-17 year-olds may sign up to be a donor, but until they are 18, a parent or legal guardian makes the final donation decision.